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Spina Bifida and Hydrocephalus…

15 September 2016

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  This is a great illustration I came across from Cincinnati Children’s on two of Evanna’s conditions: the spina bifida and the expected hydrocephalus (and as I’ll explain below, also indirectly illustrates the Chiari II malformation).   Normally-developed baby on left; baby with both conditions on the right.   For Evanna’s spina bifida, her lesion […]

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A Busy, Busy Day…

5 September 2016

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Wednesday this week will be a very busy, busy day…and will give us insight on what Evanna’s clinic days may be like in the future when she goes up to Seattle Children’s. The schedule will be something like this: 10:30am – Leave house; drive to Seattle 12:15pm – check in for ultrasound 1:30pm – walk […]

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A Staggering Stat…

26 August 2016

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I read a stat this evening that really staggered and upset me. Maybe I should have expected it, considering where we find ourselves as a country. Upwards of 65% of babies diagnosed with spina bifida are terminated…aborted…ended. 65%. It breaks my heart. There are so many things I want to write about that, and for the […]

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Monday’s Little Scare…

23 August 2016

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Subtitled, as promised: Because This Pregnancy Hasn’t Been Eventful Enough… Monday morning, while I’m working at client’s office in Tacoma, I get a message from JoAnn. She was experiencing some symptoms (I’ll spare you the details) that were cause for concern. Possible pre-term labor. So she called the MFM, and they wanted her to go into […]

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Even Better Than God’s Promises…

20 August 2016

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In the Christian faith, much is made of God’s promises. And rightfully so. But sometimes we go a little overboard. Do a Google search and you’ll see all kinds of lists and categories of promises, or which promises to remember when you’re going through which kind of trial. All of that is fine and good, […]

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And UW Medical Center’s Response…

17 August 2016

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Late this afternoon I received the reply from UM Medical Center’s Patient Relations (at 4:27pm, to be exact). Original email and info from previous post here. It could be summed up in one word: bureaucracy. But that would make for far too short of a post, and I wanted to share what their response was after […]

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A Date and Disappointment…

16 August 2016

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Yesterday we had our initial consult at UW Medical Center in Seattle, which consisted of an ultrasound (they require their own, and apparently aren’t on the same system as Franciscan in Tacoma, so they get the reports, but can’t view the images…necessitating the ultrasound the verify the information in the reports). Regardless, it turned out […]

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Fundamental Changes and Big Adjustments…

8 August 2016

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Just in case things didn’t feel like they were really getting really real: we’re at 31 weeks today, so with the scheduled induction/c-section early, that means we’re in SINGLE DIGITS in weeks until Evanna is here! {As for the scheduled induction/c-section, three quick points: We won’t know date/time until Aug 15th when we have the initial […]

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Real Talk: The Birth…

6 August 2016

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This video captures a lot of what we’ll be facing with Evanna’s birth and the days following, and is well worth the time to watch: There are differences, of course, between the baby in the video and Evanna, but the basics of the timeline are there. For us, there’s a possibility of doing a vaginal […]

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Special Needs: A Description, Not A Conclusion…

3 August 2016

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I have a secret to share. A handful of people know, but most would never guess…this trip into ‘special needs’ isn’t our first rodeo. You see, when Sam was 2, he was delayed in speech. We didn’t initially think much of it, because as a boy, speech is often developed later than in girls. He […]

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